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Autor/inn/enMenrath, Ingo; Ernst, Gundula; Lange, Karin; Eisemann, Nora; Szczepanski, Ruediger; Staab, Doris; Degner, Mareike; Thyen, Ute
TitelEvaluation of a Generic Patient Education Program in Children with Different Chronic Conditions
QuelleIn: Health Education Research, 34 (2019) 1, S.50-61 (12 Seiten)Infoseite zur Zeitschrift
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN0268-1153
DOI10.1093/her/cyy045
SchlagwörterChild Health; Chronic Illness; Patient Education; Program Effectiveness; Knowledge Level; Symptoms (Individual Disorders); Health Needs; Quality of Life; Life Satisfaction; Barriers; Diseases; Family Attitudes; Learning Modules
AbstractFor frequent pediatric chronic conditions, especially less common chronic conditions patient education programs are missing. A recently developed modular patient education approach (ModuS) combines disease-specific modules with generic psychosocial topics. ModuS was associated with increased disease-specific knowledge and improvements in families' well-being in children with asthma. In this study we tested if new developed ModuS programs for seven, mostly less common, chronic conditions show comparable program-associated effects. ModuS education programs were offered to the affected child and its parents. Disease-specific knowledge, children's health-related quality of life, life satisfaction and condition-specific burden were measured before, directly following and 6 weeks after participation in the program. The results were compared with families who received a ModuS asthma program. One hundred and sixty-eight children participated. Families were highly satisfied with the programs. Program participation was associated with increased families' knowledge, children`s self-reported health-related quality of life and reduced condition-specific burden. The results were comparable with the results of 230 families who participated in a ModuS asthma program. The ModuS approach allowed the development of patient education programs for children with a variety of chronic conditions. Therefore, ModuS closed an important healthcare gap. [Co-written with the ModuS Study Group.] (As Provided).
AnmerkungenOxford University Press. Great Clarendon Street, Oxford OX2 6DP, UK. Tel: +44-1865-353907; Fax: +44-1865-353485; e-mail: jnls.cust.serv@oxfordjournals.org; Web site: http://her.oxfordjournals.org/
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2020/1/01
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