Psychiatric Care of Children with Autism Spectrum Disorder -- What Do Their Siblings Think about It? A Qualitative Study

Autor/inn/en	Sibeoni, Jordan; Chambon, Louise; Pommepuy, Noel; Rappaport, Clementine; Revah-Levy, Anne
Titel	Psychiatric Care of Children with Autism Spectrum Disorder -- What Do Their Siblings Think about It? A Qualitative Study
Quelle	In: Autism: The International Journal of Research and Practice, 23 (2019) 2, S.326-337 (12 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	1362-3613
DOI	10.1177/1362361317728435
Schlagwörter	Expectation; Autism; Pervasive Developmental Disorders; Siblings; Sibling Relationship; Children; Adolescents; Attitudes; Family Relationship; Intervention; Day Programs; Caregivers; Foreign Countries; Hospitals; Program Effectiveness; Interpersonal Communication; France (Paris) + Suchen Sie Ihr Suchwort? Expectancy; Erwartung; Autismus; Sibling; Geschwister; Sibling relations; Geschwisterbeziehung; Child; Kind; Kinder; Adolescent; Adolescence; Adoleszenz; Jugend; Jugendalter; Jugendlicher; Attitude; Einstellung; Verhalten; Caregiver; Carer; Betreuungsperson; Pfleger; Ausland; Krankengymnast; Krankenhaus; Interpersonale Kommunikation
Abstract	The expectations and role of families in the care of children with autism spectrum disorder are increasingly important. Nonetheless, no study has thus far explored the perspectives of siblings about the care received by a brother or sister with this disorder. The objective of this study was to fill this gap in the literature. This multicentre qualitative study took place in France, where we conducted semi-structured interviews with adolescents who were older siblings of children receiving care in a day hospital for an autism spectrum disorder. Data collection by "purposive sampling" continued until we reached 'theoretical sufficiency', and data analysis was thematic. The study included 20 participants: 13 sisters and 7 brothers. Four themes emerged in the data analysis: (1) the treatment targets, (2) the treatment's perceived effectiveness, (3) the complex questions it raises and (4) the role of intrafamily relationships. Our results allowed us to report original aspects of the experience of siblings, in particular, their confusion with regard to the treatment, their difficulty in separating themselves from their parents' discourse and their assertion of their role as caregivers for their younger brothers and sisters. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2020/1/01