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Autor/inn/enGalpin, James; Barratt, Penny; Ashcroft, Edward; Greathead, Scot; Kenny, Lorcan; Pellicano, Elizabeth
Titel'The Dots Just Don't Join Up': Understanding the Support Needs of Families of Children on the Autism Spectrum
QuelleIn: Autism: The International Journal of Research and Practice, 22 (2018) 5, S.571-584 (14 Seiten)
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN1362-3613
DOI10.1177/1362361316687989
SchlagwörterFamily Needs; Autism; Pervasive Developmental Disorders; Children; Parents; Intellectual Disability; Well Being; Self Efficacy; Parent Attitudes; Semi Structured Interviews; Parent Surveys; Foreign Countries; Speech Impairments; United Kingdom (London)
AbstractMuch research has documented the elevated levels of stress experienced by families of autistic children. Yet remarkably little research has examined the types of support that these families perceive to be beneficial to their lives. This study, co-produced by researchers and school-based professionals, sought to establish these families' support needs from their own perspectives. In total, 139 parents of autistic children with additional intellectual disabilities and limited spoken communication, all attending an inner-city London school, participated in an initial survey examining parental wellbeing, self-efficacy and the extent to which they felt supported. Semi-structured interviews were conducted with a subgroup of parents (n = 17), some of whom reported in the survey that they felt unsupported, in order to gain their in-depth perspectives. The results from both the survey and the interviews suggested that existing support (particularly from formal support services) was not meeting parents' needs, which ultimately made them feel isolated and alienated. Parents who were interviewed called for service provision that adopted a relational, family-centred approach--one that understands the specific needs of the whole family, builds a close working relationship with them and ensures that they are supported at times when the parents and families feel they need it most. (As Provided).
AnmerkungenSAGE Publications. 2455 Teller Road, Thousand Oaks, CA 91320. Tel: 800-818-7243; Tel: 805-499-9774; Fax: 800-583-2665; e-mail: journals@sagepub.com; Web site: http://sagepub.com
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2020/1/01
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