Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry

Autor/inn/en	Daniels, Amy M.; Rosenberg, Rebecca E.; Anderson, Connie; Law, J. Kiely; Marvin, Alison R.; Law, Paul A.
Titel	Verification of Parent-Report of Child Autism Spectrum Disorder Diagnosis to a Web-Based Autism Registry
Quelle	In: Journal of Autism and Developmental Disorders, 42 (2012) 2, S.257-265 (9 Seiten) PDF als Volltext Verfügbarkeit
Sprache	englisch
Dokumenttyp	gedruckt; online; Zeitschriftenaufsatz
ISSN	0162-3257
DOI	10.1007/s10803-011-1236-7
Schlagwörter	Autism; Disability Identification; Internet; Parents; Pervasive Developmental Disorders; Web Sites; Epidemiology; Databases; Clinical Diagnosis + Suchen Sie Ihr Suchwort? Autismus; Eltern; Web-Design; Epidemiologie; Datenbank
Abstract	Growing interest in autism spectrum disorder (ASD) research requires increasingly large samples to uncover epidemiologic trends; such a large dataset is available in a national, web-based autism registry, the Interactive Autism Network (IAN). The objective of this study was to verify parent-report of professional ASD diagnosis to the registry's database via a medical record review on a sample of IAN Research participants. Sixty-one percent of families agreed to participate; 98% (n = 116) of whom provided documentation verifying a professionally diagnosed ASD. Results of this study suggest that information collected from parents participating in IAN Research is valid, participants can be authenticated, and that scientists can both confidently use IAN data and recruit participants for autism research. (As Provided).
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Erfasst von	ERIC (Education Resources Information Center), Washington, DC
Update	2017/4/10