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Autor/inn/enWheeler, Anne C.; Skinner, Debra G.; Bailey, Donald B.
TitelPerceived Quality of Life in Mothers of Children with Fragile X Syndrome
QuelleIn: American Journal on Mental Retardation, 113 (2008) 3, S.159-177 (19 Seiten)
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Spracheenglisch
Dokumenttypgedruckt; online; Zeitschriftenaufsatz
ISSN0895-8017
DOI10.1352/0895-8017(2008)113[159:PQOLIM]2.0.CO;2
SchlagwörterMothers; Quality of Life; Child Rearing; Social Environment; Genetics; Disabilities; Attitude Measures; Parent Attitudes; Mental Health; Well Being; Predictor Variables; Personality Traits; Parenting Skills; Stress Variables
AbstractA mixed method approach was used to explore quality of life of 101 mothers of children with fragile X syndrome. Mothers completed a self-report of personal quality of life and measures of mental health and well-being. A subset was interviewed about quality of life. The distribution of scores on the Quality of Life Inventory was similar to the norms, indicating that these mothers do not, as a whole, report a lower quality of life than does the average woman. Significant predictors of quality of life were trait hope and parenting stress. The most common positive factor was being a mother. However, they also indicated that parenting a child with fragile X presented challenges and stressors, primarily when the social environment was not supportive. (Author).
AnmerkungenAmerican Association on Intellectual and Developmental Disabilities. P.O. Box 1897, Lawrence, KS 66044-1897. Tel: 785-843-1235; Fax: 785-843-1274; e-mail: AJMR@allenpress.com; Web site: http://aaidd.allenpress.com
Erfasst vonERIC (Education Resources Information Center), Washington, DC
Update2017/4/10
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